The Psychiatrist and Autism, Aspergers, and PDD

If you have a child with an intellectual disability such as Autism, Aspergers Syndrome, or Pervasive Development Disorder then chances are you have a psychiatrist in your life. They are responsible for putting mood altering substances into your child. Often times this is very necessary, and is done for good reason. The problem that occurs is that often times the psychiatrist is making their determination based on ten to fifteen minutes of face time. With fewer and fewer providers accepting Medicade, it is just a fact of life that they are stretched so thin. They are the experts when it comes to pharmacology, but you are the expert when it comes to your child.

Here are a few things to remember when you are going to see the psychiatrist. The first thing that is inevitably going to happen is that they are going to talk to you rather than your child. They may talk briefly to your child, but 90% of their determination of treatment will come from what you have to say. You should be prepared for this ahead of time. Write down your concerns. Possibly in short bullet points and give it to the doctor when you walk into their office. You want these issues thought out ahead of time for two reasons. The first is that you want plenty of time to think about these before you get into the office. You don't want to say "Oh he seems agitated lately", only to think about it later and realize he hasn't been sleeping well. He could be agitated because he hasn't been sleeping. The doctor may prescribe a med to control the agitation, that doesn't address the sleeping. You want the time to think thing through. The second reason is that you want all of your concerns addressed. If you hand the doctor a short concise bullet pointed note, then you have a much better chance of succeeding in this. Don't make it long and drawn out. Remember the psychiatrist is well intentioned and wants the best for your child, but is limited on time.

The last thing you should do before you leave the psychiatrist's office is ask them how they would prefer you communicate with them in between visits. I have found that a lot of doctors would appreciate a short email from time to time. Emphasis on the word short. The psychiatrist is a part of your child's team, but they are often the outsider. Find out from them how, and how much they would like to be informed on your child.

These tips will take you a long way when it comes to your visits with the psychiatrist. Everyone wants whats best for your child, you just have to assert a little. To ensure that your child gets the best care possible.

Special Ed and IEP

When it comes to dealing with the Special Education System your experience can be great, or down right horrible.  I hear from parents a lot, in my current role, that they are very frustrated with the whole process.  The most important tool for success is the IEP.  What goes into this document sets your child's course for instruction.  The areas defined in the IEP are the yardstick by which the schools will say they did or did not do their job.  Every parent of a special needs child should be well versed in the language of the IEP.  You should know your rights and how to make your wishes known.  If your having trouble with the school giving you the run around, or are just not getting your needs met then check this out. Special Education - Parents Guide to IEP

Back to School for Children With Autism.

When it's time to take your child with an Autism Spectrum Disorder to school, it can be quite a turbulent time, to say the least. All routine is thrown out the window and replaced with sheer and utter chaos. New overwhelming sights, sounds, smells, and touches will all be experienced in the first day of class. In order to make this transition a little more peaceful there are a few steps you can take ahead of time to prepare your child for success in a mainstream environment.

1. Take your child to the school a couple of times before the start of the school year. Walk them around the halls. Let the feel the walls, adjust to the lighting, and get used to the pattern of the tile on the floor. This might be a good time to map out their routes, if they will be changing classrooms. Show them where the restrooms are in relation to their class room/rooms. Let them see their classroom and become familiar with it as well. I understand you can't do this to far in advance, but the more visits you can get in the better.

2. Introduce yourself and your child to the teacher. Communication between you and your child's teacher through out the school year is going to be key in their success. You might as well make your self known right away, and let then know you are an involved parent. Let the teacher know you are their to help however you can. During this time your child will be able to become familiar with the teacher as well. This should help the transition if there is a recognizable face among all the craziness.

3. Rehearse, Rehearse, Rehearse! Devote a little time each day to going over scenarios that your child might encounter while they are at school. What to do when you get upset at a student/teacher is a good one. What do you do if you get lost trying to find your room. Who do you go to if someone is picking on you or bullying you. For that matter make sure your child knows what bullying is and understands that it is not OK.

This is just a general guide. You know your child, if preparing them ahead of time will only make them perseverate on it, then this will not work for you. I hope this has been a help to some.

Activities for Children With Autism Spectrum Disorders

Here is an article I found that seemed to be of some help.  The author created a training package called the "Essential Guide to Autism" which is really good system. Let me know what you think.  I'll post more from Rachel as I get more.
If your interested after reading this I have a link to it on the side of my page.

Activities for Children With Autism.

Parents, teachers, and other caregivers often get so caught up in educating and providing structure for children with autism that they forget that, above all, they are children. Like other children in their age group, autistic children want to have fun. While some activities may not be suitable for those suffering from autism, there are a number of fun games to play with autistic children, many of which can get them involved with others or help them further develop motor or social skills while just focusing on having a good time.

Autistic children in the elementary school age range can benefit greatly from song. Even children who do not verbally communicate with words can learn to hum along or play simple instruments, such as tambourines or whistles. Using sounds that are repetitive and with educational lyricshelps autistic children learn school lessons but also gives them an outlet for some of the sensory stimulation they need, such as yelling. Play follow the leader with the instruments to help the children focus their attention and improve socialization skills.

Depending on how mature your child is, he or she may also not only be able to participate in regular childhood games, but greatly benefit from them as well. These activities, including tag and other games, can be learned more easily than you think. Stick with games in which the autistic child is not forced to have close physical contact with other children, as this may be hurtful for autistic individuals. Also, remember to play to your child’s strengths or what he or she wishes to learn. If he or she has a problem with yelling inappropriately, for example, encouraging him or her to be involved with a game of hide and seek may help curb this behavior.

Autistic children often wish to be included in games with non-autistic peers, and so this may help with the learning process. At home, focus on games that involve closer contact with trusted family members. For example, make it a game to get across the room without touching the floor. Perhaps the only route in some instances is to be carried. Remember that each child is different developmentally, so stay in tune with how challenging the activities should be.

As your child matures, he or she may want to be involved with organized sports. This should be encouraged, but choose your sport carefully. Golf, baseball, and other sports that do not involve strong personal sensory stimulation may be better for your child than something like tackle football. However, be open to all possibilities. Be sure the team’s coach understands your child’s disability and is willing to work with him or her.

At this later developmental stage, also continue encouraging learning activities. Sensory games work well to further teach these children, and as they mature emphasize the importance of appropriate behavior as you are playing these games. Using things like water balloons in games your child already enjoys is often as fun for children with autism. Also realize that an autistic individual has trouble seeing things from another’s point of view. Therefore, they may be less likely to enjoy games in which something must be kept a secret from another person (like go-fish).

Overall, you and your child need to grow together. Remember that although he or she has many special needs, sometimes your child needs to simply be a kid as well. Encourage play along with work, and realize that games and activities for autistic children may fulfil two key elements, socialization skills for life and learning to enjoy playing with their peers.

There are many more resources and information about diagnosing, controlling and treating autism in, The Essential Guide to Autism. 

Hello and Welcome!!

Hi I just wanted to welcome you all to my site.  I have worked in the field of intellectual disabilities for twenty years, and thought wouldn't be nice if someone put together some resources for the real world.  I am always looking for new products, articles, and info when it comes to Autism Spectrum Disorders and many other disabilities.  I hope to gather and share this with you here.  This field is my passion and I hope this site will be of service to you.  Once again, welcome.